{"id":28701,"date":"2024-03-19T15:10:33","date_gmt":"2024-03-19T06:10:33","guid":{"rendered":"https:\/\/wheelog.com\/hp\/?p=28701"},"modified":"2024-03-19T16:20:54","modified_gmt":"2024-03-19T07:20:54","slug":"%e3%80%90%e6%b4%bb%e5%8b%95%e5%a0%b1%e5%91%8a%e3%80%91%e4%b8%96%e7%95%8c%e5%b8%8c%e5%b0%91%e3%83%bb%e9%9b%a3%e6%b2%bb%e6%80%a7%e7%96%be%e6%82%a3%e3%81%ae%e6%97%a5-rdd2024%e3%81%a7%e3%82%a6%e3%82%a3","status":"publish","type":"post","link":"https:\/\/wheelog.com\/hp\/archives\/28701","title":{"rendered":"\u3010\u6d3b\u52d5\u5831\u544a\u3011\u4e16\u754c\u5e0c\u5c11\u30fb\u96e3\u6cbb\u6027\u75be\u60a3\u306e\u65e5 RDD2024\u3067\u30a6\u30a3\u30fc\u30ed\u30b0\u304c\u30d6\u30fc\u30b9\u51fa\u5c55\u3092\u884c\u3044\u307e\u3057\u305f"},"content":{"rendered":"\n<figure class=\"wp-block-image size-full\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"576\" data-attachment-id=\"28704\" data-permalink=\"https:\/\/wheelog.com\/hp\/archives\/28701\/2181135408e41fe8d442945aaa3a5a77-5\" data-orig-file=\"https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/2181135408e41fe8d442945aaa3a5a77.jpg\" data-orig-size=\"1024,576\" data-comments-opened=\"0\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;1&quot;}\" data-image-title=\"2181135408e41fe8d442945aaa3a5a77\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/2181135408e41fe8d442945aaa3a5a77.jpg\" src=\"https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/2181135408e41fe8d442945aaa3a5a77.jpg\" alt=\"\" class=\"wp-image-28704\" srcset=\"https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/2181135408e41fe8d442945aaa3a5a77.jpg 1024w, https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/2181135408e41fe8d442945aaa3a5a77-300x169.jpg 300w, https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/2181135408e41fe8d442945aaa3a5a77-768x432.jpg 768w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p>2\u6708\u6700\u7d42\u65e5\u306f\u3001\u300c\u4e16\u754c\u5e0c\u5c11\u30fb\u96e3\u6cbb\u6027\u75be\u60a3\u306e\u65e5\u300d\uff08Rare Disease Day, RDD\uff09\u3067\u3059\u3002\u4eca\u5e74\u5ea6\u3082\u4ee3\u8868\u306e\u7e54\u7530\u53cb\u7406\u5b50\u304c\u3001\u30a2\u30f3\u30d0\u30b5\u30c0\u30fc\u3068\u3057\u3066\u6d3b\u52d5\u3057\u3066\u304a\u308a\u307e\u3059\u3002<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<h5 class=\"wp-block-heading\">\u4e16\u754c\u5e0c\u5c11\u30fb\u96e3\u6cbb\u6027\u75be\u60a3\u306e\u65e5\uff08RDD\uff09\u306b\u3064\u3044\u3066<\/h5>\n\n\n\n<p>\u4e16\u754c\u4e2d\u306e\u5e0c\u5c11\u30fb\u96e3\u6cbb\u6027\u75be\u60a3\u306e\u60a3\u8005\u6570\u3092\u3042\u308f\u305b\u308b\u30683\u5104\u4eba\u3068\u63a8\u5b9a\u3055\u308c\u307e\u3059\u3002\u3057\u304b\u3057\u3001\u4e00\u75be\u60a3\u3054\u3068\u306e\u60a3\u8005\u6570\u304c\u5c11\u306a\u3044\u305f\u3081\u75c5\u6c17\u306b\u3064\u3044\u3066\u308f\u304b\u3089\u306a\u3044\u3053\u3068\u3082\u591a\u304f\u3001\u8a3a\u65ad\u6a5f\u4f1a\u3084\u6cbb\u7642\u6cd5\u3001\u95a2\u4fc2\u8005\u3084\u5468\u56f2\u304b\u3089\u306e\u7406\u89e3\u306a\u3069\u304c\u4e0d\u8db3\u3057\u3066\u3044\u308b\u73fe\u72b6\u304c\u3042\u308a\u307e\u3059\u3002<\/p>\n\n\n\n<p>\u4e16\u754c\u5e0c\u5c11\u30fb\u96e3\u6cbb\u6027\u75be\u60a3\u306e\u65e5\uff08Rare Disease Day, RDD\uff09\u306f\u3001\u4e16\u754c\u4e2d\u306e\u5e0c\u5c11\u30fb\u96e3\u6cbb\u6027\u75be\u60a3\u306e\u60a3\u8005\u3055\u3093\u3084\u3054\u5bb6\u65cf\u306b\u3068\u3063\u3066\u3001\u3088\u308a\u826f\u3044\u8a3a\u65ad\u3084\u6cbb\u7642\u306b\u3088\u308b\u751f\u6d3b\u306e\u8cea\uff08QOL\uff09\u306e\u5411\u4e0a\u3092\u76ee\u6307\u3059\u6d3b\u52d5\u3067\u3059\u3002\u3046\u308b\u3046\u5e74\u306e\u300cRare\u306a\u65e5\u300d\u306b\u3042\u308f\u305b\u3001\u6bce\u5e742\u6708\u6700\u7d42\u65e5\u304c\u5b9a\u7fa9\u65e5\u3068\u306a\u3063\u3066\u3044\u307e\u3059\u30022008\u5e74\u304b\u3089\u30e8\u30fc\u30ed\u30c3\u30d1\u3067\u30b9\u30bf\u30fc\u30c8\u3057\u305f\u672c\u9818\u57df\u4e16\u754c\u6700\u5927\u306e\u793e\u4f1a\u5553\u767a\u30a4\u30d9\u30f3\u30c8\u3067\u3042\u308a\u3001\u65e5\u672c\u3067\u3082\u305d\u306e\u8da3\u65e8\u306b\u8cdb\u540c\u3057\u30662010\u5e74\u304b\u3089\u5168\u56fd\u3067\u958b\u50ac\u3057\u3001\u60a3\u8005\u3084\u5bb6\u65cf\u540c\u58eb\u3001\u95a2\u4fc2\u8005\u3089\u304c\u3064\u306a\u304c\u308b\u6a5f\u4f1a\u3092\u3064\u304f\u3063\u3066\u3044\u307e\u3059\u3002<\/p>\n<cite><a href=\"https:\/\/rddjapan.info\/2024\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/rddjapan.info\/2024<\/a><\/cite><\/blockquote>\n\n\n\n<div id=\"ez-toc-container\" class=\"ez-toc-v2_0_82_2 ez-toc-wrap-left counter-hierarchy ez-toc-counter ez-toc-grey ez-toc-container-direction\">\n<div class=\"ez-toc-title-container\">\n<p class=\"ez-toc-title\" style=\"cursor:inherit\">\u76ee\u6b21<\/p>\n<span class=\"ez-toc-title-toggle\"><\/span><\/div>\n<nav><ul class='ez-toc-list ez-toc-list-level-1 ' ><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-1\" href=\"https:\/\/wheelog.com\/hp\/archives\/28701\/#RDD_Japan_2024%E3%82%A4%E3%83%99%E3%83%B3%E3%83%88%E3%81%A7%E3%81%AE%E3%83%96%E3%83%BC%E3%82%B9%E5%87%BA%E5%B1%95\" >RDD Japan 2024\u30a4\u30d9\u30f3\u30c8\u3067\u306e\u30d6\u30fc\u30b9\u51fa\u5c55<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-2\" href=\"https:\/\/wheelog.com\/hp\/archives\/28701\/#%E5%A4%A7%E9%98%AA%E3%81%A7%E3%81%AE%E8%A1%97%E6%AD%A9%E3%81%8D%E3%82%A4%E3%83%99%E3%83%B3%E3%83%88%E3%80%80%E8%BB%8A%E3%81%84%E3%81%99%E3%83%A6%E3%83%BC%E3%82%B6%E3%83%BC%E3%81%AE%E5%8F%82%E5%8A%A0%E5%8B%9F%E9%9B%86%E4%B8%AD\" >\u5927\u962a\u3067\u306e\u8857\u6b69\u304d\u30a4\u30d9\u30f3\u30c8\u3000\u8eca\u3044\u3059\u30e6\u30fc\u30b6\u30fc\u306e\u53c2\u52a0\u52df\u96c6\u4e2d!<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-3\" href=\"https:\/\/wheelog.com\/hp\/archives\/28701\/#RDD%E3%81%AE%E6%84%8F%E7%BE%A9%E3%81%A8%E7%9B%AE%E7%9A%84\" >RDD\u306e\u610f\u7fa9\u3068\u76ee\u7684<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-4\" href=\"https:\/\/wheelog.com\/hp\/archives\/28701\/#%E3%82%B9%E3%83%9D%E3%83%B3%E3%82%B5%E3%83%BC%E5%8B%9F%E9%9B%86\" >\u30b9\u30dd\u30f3\u30b5\u30fc\u52df\u96c6<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-5\" href=\"https:\/\/wheelog.com\/hp\/archives\/28701\/#%E5%80%8B%E4%BA%BA%E3%82%B5%E3%83%9D%E3%83%BC%E3%82%BF%E3%83%BC%E3%81%AB%E3%81%AA%E3%82%8A%E3%81%BE%E3%81%9B%E3%82%93%E3%81%8B%EF%BC%9F\" >\u500b\u4eba\u30b5\u30dd\u30fc\u30bf\u30fc\u306b\u306a\u308a\u307e\u305b\u3093\u304b\uff1f<\/a><\/li><\/ul><\/nav><\/div>\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"RDD_Japan_2024%E3%82%A4%E3%83%99%E3%83%B3%E3%83%88%E3%81%A7%E3%81%AE%E3%83%96%E3%83%BC%E3%82%B9%E5%87%BA%E5%B1%95\"><\/span>RDD Japan 2024\u30a4\u30d9\u30f3\u30c8\u3067\u306e\u30d6\u30fc\u30b9\u51fa\u5c55<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"1024\" height=\"768\" data-attachment-id=\"28702\" data-permalink=\"https:\/\/wheelog.com\/hp\/archives\/28701\/img_0774\" data-orig-file=\"https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/IMG_0774.jpg\" data-orig-size=\"1024,768\" data-comments-opened=\"0\" data-image-meta=\"{&quot;aperture&quot;:&quot;1.5&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;iPhone 13 Pro&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;1709208122&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;5.7&quot;,&quot;iso&quot;:&quot;80&quot;,&quot;shutter_speed&quot;:&quot;0.02&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;1&quot;}\" data-image-title=\"IMG_0774\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/IMG_0774.jpg\" src=\"https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/IMG_0774.jpg\" alt=\"\" class=\"wp-image-28702\" srcset=\"https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/IMG_0774.jpg 1024w, https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/IMG_0774-300x225.jpg 300w, https:\/\/wheelog.com\/hp\/wp-content\/uploads\/2024\/03\/IMG_0774-768x576.jpg 768w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p>\u4eca\u5e74\u306f4\u5e74\u306b1\u5ea6\u306e\u3046\u308b\u3046\u5e74\u3067\u3001RDD Japan 2024\u30a4\u30d9\u30f3\u30c8\u3067WheeLog\u306f\u30d6\u30fc\u30b9\u51fa\u5c55\u3055\u305b\u3066\u3044\u305f\u3060\u304d\u307e\u3057\u305f\u3002<\/p>\n\n\n\n<p>\u30d6\u30fc\u30b9\u51fa\u5c55\u3067\u306f\u3001\u8eca\u3044\u3059\u30e6\u30fc\u30b6\u30fc\u304c\u65e5\u5e38\u751f\u6d3b\u3067\u76f4\u9762\u3059\u308b\u69d8\u3005\u306a\u793e\u4f1a\u8ab2\u984c\u3001WheeLog\u306e\u53d6\u308a\u7d44\u307f\u3084\u3001\u30d0\u30ea\u30a2\u30d5\u30ea\u30fc\u60c5\u5831\u306e\u5171\u6709\u304c\u3044\u304b\u306b\u793e\u4f1a\u5168\u4f53\u306b\u5fc5\u8981\u304b\u3092\u3001\u5e83\u304f\u4f1d\u3048\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3057\u305f\u3002<\/p>\n\n\n\n<p>\u4f1a\u5834\u3092\u8a2a\u308c\u305f\u591a\u304f\u306e\u4f01\u696d\u95a2\u4fc2\u8005\u3084\u5b66\u751f\u305f\u3061\u306f\u3001\u8eca\u3044\u3059\u30e6\u30fc\u30b6\u30fc\u306e\u73fe\u72b6\u306b\u3064\u3044\u3066\u771f\u5263\u306b\u805e\u3044\u3066\u304f\u3060\u3055\u3044\u307e\u3057\u305f\u3002\u7279\u306b\u3001\u30a6\u30a3\u30fc\u30ed\u30b0\u304c\u63d0\u4f9b\u3059\u308b\u30d0\u30ea\u30a2\u30d5\u30ea\u30fc\u60c5\u5831\u3084\u8857\u6b69\u304d\u30d7\u30ed\u30b0\u30e9\u30e0\u306b\u306f\u3001\u3068\u3066\u3082\u95a2\u5fc3\u304c\u5bc4\u305b\u3089\u308c\u307e\u3057\u305f\u3002\u307e\u305f\u3001\u5730\u56f3\u4e0a\u306b\u30d0\u30ea\u30a2\u30d5\u30ea\u30fc\u60c5\u5831\u304c\u3042\u308b\u3060\u3051\u3067\u306f\u306a\u304f\u3001\u5199\u771f\u306e\u60c5\u5831\u304c\u304c\u3042\u308b\u3053\u3068\u304c\u3001\u8eca\u3044\u3059\u30e6\u30fc\u30b6\u30fc\u306b\u3068\u3063\u3066\u975e\u5e38\u306b\u91cd\u8981\u3067\u3042\u308b\u3053\u3068\u3092\u304a\u4f1d\u3048\u3059\u308b\u3068\u3001\u975e\u5e38\u306b\u95a2\u5fc3\u3092\u6301\u3063\u3066\u805e\u3044\u3066\u304f\u3060\u3055\u3063\u3066\u3044\u307e\u3057\u305f\u3002<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"%E5%A4%A7%E9%98%AA%E3%81%A7%E3%81%AE%E8%A1%97%E6%AD%A9%E3%81%8D%E3%82%A4%E3%83%99%E3%83%B3%E3%83%88%E3%80%80%E8%BB%8A%E3%81%84%E3%81%99%E3%83%A6%E3%83%BC%E3%82%B6%E3%83%BC%E3%81%AE%E5%8F%82%E5%8A%A0%E5%8B%9F%E9%9B%86%E4%B8%AD\"><\/span>\u5927\u962a\u3067\u306e\u8857\u6b69\u304d\u30a4\u30d9\u30f3\u30c8\u3000\u8eca\u3044\u3059\u30e6\u30fc\u30b6\u30fc\u306e\u53c2\u52a0\u52df\u96c6\u4e2d!<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<p>\u6628\u5e74\u5ea6\u306f\u3001\u65e5\u672c\u6a4b\u30a8\u30ea\u30a2\u306e\u6b66\u7530\u85ac\u54c1\u5de5\u696d\u682a\u5f0f\u4f1a\u793e\u3055\u307e\u306e\u30b0\u30ed\u30fc\u30d0\u30eb\u672c\u793e\u3092\u4f1a\u5834\u306b\u3001\u8eca\u3044\u3059\u8857\u6b69\u304d\u30a4\u30d9\u30f3\u30c8\u3092\u958b\u50ac\u3057\u307e\u3057\u305f\u3002<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-wp-embed is-provider-wheelog wp-block-embed-wheelog\"><div class=\"wp-block-embed__wrapper\">\n<blockquote class=\"wp-embedded-content\" data-secret=\"awCSoJLwrc\"><a href=\"https:\/\/wheelog.com\/hp\/archives\/24804\">\u3010\u30a4\u30d9\u30f3\u30c8\u30ec\u30dd\u3011 RDD \u00d7 WheeLog! in \u65e5\u672c\u6a4b 2023<\/a><\/blockquote><iframe class=\"wp-embedded-content\" sandbox=\"allow-scripts\" security=\"restricted\" style=\"position: absolute; clip: rect(1px, 1px, 1px, 1px);\" title=\"&#8220;\u3010\u30a4\u30d9\u30f3\u30c8\u30ec\u30dd\u3011 RDD \u00d7 WheeLog! in \u65e5\u672c\u6a4b 2023&#8221; &#8212; WheeLog!\" src=\"https:\/\/wheelog.com\/hp\/archives\/24804\/embed#?secret=ydPqUlSLNs#?secret=awCSoJLwrc\" data-secret=\"awCSoJLwrc\" width=\"500\" height=\"282\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" 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